Empowering Patients as Co-Researchers in Social Pharmacy: Lessons Learned and Practical Tips for Meaningful Partnership and Impact
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Empowering Patients as Co-Researchers in Social Pharmacy : Lessons Learned and Practical Tips for Meaningful Partnership and Impact. / Cantarero Arevalo, Lourdes; Kaae, Susanne; Jacobsen, Ramune; Nielsen, Anders; Slyngborg, Lysander; Smistrup, Nanna; Kastrup, Liv M.; Hämeen-Anttila, Katrii; Strömberg, Aimo ; Nørgaard, Lotte Stig.
In: Research in Social and Administrative Pharmacy, Vol. 3, 2024, p. 372-376.Research output: Contribution to journal › Journal article › Research › peer-review
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TY - JOUR
T1 - Empowering Patients as Co-Researchers in Social Pharmacy
T2 - Lessons Learned and Practical Tips for Meaningful Partnership and Impact
AU - Cantarero Arevalo, Lourdes
AU - Kaae, Susanne
AU - Jacobsen, Ramune
AU - Nielsen, Anders
AU - Slyngborg, Lysander
AU - Smistrup, Nanna
AU - Kastrup, Liv M.
AU - Hämeen-Anttila, Katrii
AU - Strömberg, Aimo
AU - Nørgaard, Lotte Stig
PY - 2024
Y1 - 2024
N2 - Engaging patients as co-researchers in health service research, involving them in the design, planning, and implementation rather than treating them as mere participants, can yield positive outcomes and generate value for patients' health. It also increases patients' health literacy and empowerment, leading to more meaningful studies and substantial research impact. However, deeper levels of engagement as partners throughout the research lifecycle come with ethical and methodological challenges. This commentary provides actionable advice for Patient Engagement and Involvement (PEI) in social pharmacy research through a rapid review of models, frameworks, and guidelines and by gathering lessons from four recent social pharmacy research initiatives conducted in Nordic settings. It also identifies and discusses ethical and methodological challenges to conducting authentic and sustained patient-driven research. Deeper levels of engagement where patients take the lead in shaping the social pharmacy research question(s) are rare due to the intensity of resources required. With these 24 tips and the lessons learned, we aim to make this approach more accessible to social pharmacy researchers interested in PEI.
AB - Engaging patients as co-researchers in health service research, involving them in the design, planning, and implementation rather than treating them as mere participants, can yield positive outcomes and generate value for patients' health. It also increases patients' health literacy and empowerment, leading to more meaningful studies and substantial research impact. However, deeper levels of engagement as partners throughout the research lifecycle come with ethical and methodological challenges. This commentary provides actionable advice for Patient Engagement and Involvement (PEI) in social pharmacy research through a rapid review of models, frameworks, and guidelines and by gathering lessons from four recent social pharmacy research initiatives conducted in Nordic settings. It also identifies and discusses ethical and methodological challenges to conducting authentic and sustained patient-driven research. Deeper levels of engagement where patients take the lead in shaping the social pharmacy research question(s) are rare due to the intensity of resources required. With these 24 tips and the lessons learned, we aim to make this approach more accessible to social pharmacy researchers interested in PEI.
M3 - Journal article
VL - 3
SP - 372
EP - 376
JO - Research in Social and Administrative Pharmacy
JF - Research in Social and Administrative Pharmacy
SN - 1551-7411
ER -
ID: 376263340