TY - JOUR

T1 - Establishing research priorities related to osteoarthritis care via stakeholder input from patients

AU - Puggaard, Rikke Steffensen

AU - Ingelsrud, Lina Holm

AU - Jacobsen, Stine

AU - Kjellberg, Jakob

AU - Bandholm, Thomas

AU - Hölmich, Per

AU - Boesen, Mikael

AU - Bliddal, Henning

AU - Skou, Søren T.

AU - Schrøder, Henrik Morville

AU - Larsen, Susan Weng

AU - Møller, Anne

AU - Ziegler, Connie

AU - Troelsen, Anders

PY - 2021

Y1 - 2021

N2 - INTRODUCTION: Stakeholder involvement in research is emphasised to improve relevance. We aimed to identify, define and prioritise important research topics seen from the point of view of people with osteoarthritis (OA). METHODS: We invited 1,315 members of the user panel of the Danish Rheumatism Association to answer an electronic survey that included; 1) an open-ended question about important research topics (free-text response option), 2) 15 predefined research topics to be rated for importance and 3) predefined topics grouped into four categories in which the most important was prioritised. Free-text responses were analysed using content analysis. RESULTS: Out of 850 (65%) respondents, 483 had OA (mean ± standard deviation age 60.3 ± 10.2 years, 91% female). From the free-text responses, we identified seven research topics; 1) diagnostics, 2) prevention, 3) side effects, 4) treatment, 5) aetiology, 6) being young with OA and 7) quality of life. For “treatment”, we identified seven subtopics. Out of all topics and subtopics, “pain management” was the most frequently highlighted. All predefined topics were rated as “very important” or “somewhat important” by more than 75% of the respondents. The top prioritised topics within each category were 1) improving the diagnosis, 2) individualised treatment, 3) shared decision-making and 4) cross-sector collaboration and collaboration between professionals. CONCLUSIONS: We identified research topics that were important in the eyes of people with OA and found that “pain management” was particularly emphasised.

AB - INTRODUCTION: Stakeholder involvement in research is emphasised to improve relevance. We aimed to identify, define and prioritise important research topics seen from the point of view of people with osteoarthritis (OA). METHODS: We invited 1,315 members of the user panel of the Danish Rheumatism Association to answer an electronic survey that included; 1) an open-ended question about important research topics (free-text response option), 2) 15 predefined research topics to be rated for importance and 3) predefined topics grouped into four categories in which the most important was prioritised. Free-text responses were analysed using content analysis. RESULTS: Out of 850 (65%) respondents, 483 had OA (mean ± standard deviation age 60.3 ± 10.2 years, 91% female). From the free-text responses, we identified seven research topics; 1) diagnostics, 2) prevention, 3) side effects, 4) treatment, 5) aetiology, 6) being young with OA and 7) quality of life. For “treatment”, we identified seven subtopics. Out of all topics and subtopics, “pain management” was the most frequently highlighted. All predefined topics were rated as “very important” or “somewhat important” by more than 75% of the respondents. The top prioritised topics within each category were 1) improving the diagnosis, 2) individualised treatment, 3) shared decision-making and 4) cross-sector collaboration and collaboration between professionals. CONCLUSIONS: We identified research topics that were important in the eyes of people with OA and found that “pain management” was particularly emphasised.

M3 - Journal article

C2 - 33543702

AN - SCOPUS:85101245863

VL - 68

SP - 1

EP - 8

JO - Danish Medical Journal

JF - Danish Medical Journal

SN - 2245-1919

IS - 2

M1 - A09200683

ER -